Research Synthesis Methods

Overcoming obstacles in obtaining individual participant data for meta‐analysis

Journal Article

Individual participant data (IPD) is the backbone of scientific inquiry and important to a meta‐analysis for a variety of reasons. It is therefore important to be able to access IPD, and yet, obstacles persist that make it difficult for meta‐analysts, as well as interested primary study analysts, to obtain it. In this paper, we discuss the barriers to obtaining IPD via online repositories or contacting primary study authors and provide an example data sharing agreement that can be used to ameliorate a few of these issues. We also discuss the ethics of data sharing. The goal of this paper is to help meta‐analysts anticipate these potential barriers at the outset of their studies and hopefully increase the likelihood of producing thorough IPD syntheses and foster collaborative partnerships with primary study researchers. Copyright © 2016 John Wiley & Sons, Ltd.

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Published features on are checked for statistical accuracy by a panel from the European Network for Business and Industrial Statistics (ENBIS)   to whom Wiley and express their gratitude. This panel are: Ron Kenett, David Steinberg, Shirley Coleman, Irena Ograjenšek, Fabrizio Ruggeri, Rainer Göb, Philippe Castagliola, Xavier Tort-Martorell, Bart De Ketelaere, Antonio Pievatolo, Martina Vandebroek, Lance Mitchell, Gilbert Saporta, Helmut Waldl and Stelios Psarakis.